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Ahus and digital home follow-up

Ahus today has an ever-growing group of patients in digital home monitoring (DHO). The home follow-up offers many advantages for the patients, but at the same time Ahus experiences challenges related to handling patients' health information, especially among children and young people, and in interaction with municipalities. In the sandbox, they want to gain clarity on how they can safeguard patients' rights and at the same time ensure that sensitive data is shared in a safe manner.

Ahus has two different issues they want to bring into the sandbox. One concerns children and young people's access to the DHO solution.

While adult patients use BankID to log in, children must log in via their parents' phone number, which can challenge children's rights, especially as they get older. At 16, for example, children are medically of legal age and should be able to manage their own health more independently. Ahus is now working on developing a next of kin login that better facilitates children and young people to handle their own health information, while at the same time giving guardians or other next of kin access if necessary.

Another challenge Ahus wants to bring to the sandbox is the lack of interaction between DHO solutions used in the municipality and those used in the hospital. Today, a patient can have one digital home follow-up solution in the municipality and another in the hospital, without these systems talking to each other or being integrated with record systems at GPs or quality registers. This can lead to ineffective patient follow-up, which in turn can have consequences for the patient's health.

For example, Ahus receives data from diabetes patients that could be useful for GPs or quality registers, but which are not automatically shared due to a lack of technological integration. At the same time, there are challenges with data security and privacy with such information sharing. Ahus therefore wants to investigate which regulatory requirements must be in place to ensure safe sharing of patient data between different healthcare services.

In addition to technical challenges that require solutions from actors such as Norsk Helsenett and Sykehuspartner, there is also a need for clear regulatory frameworks that can ensure safe and secure data flow between different healthcare institutions. Ahus wants to use the sandbox to gain insight into how this can best be carried out, while at the same time safeguarding patients' privacy. This is particularly important in a future where DHO will play an increasingly large role in the healthcare system.